ANCROD STROKE PROGRAM RESOURCES FOR NTI-ASP-0502 AND NTI-ASP-0503
American Stroke Association
Telephone: 1-888-4STROKE (478-7653)
Website: http://www.strokeassociation.org
The American Stroke Association is a division of the American Heart Association that focuses on reducing risk, disability and death from stroke through research, education, fund-raising, and advocacy. The American Stroke Association’s website is designed for the general population, as well as health care practitioners, and includes a links to local advocacy groups and a free newsletter, as well as to Spanish-language and African-American resources.
Brain Aneurysm Foundation
Telephone: (617) 723-3870 or 888-BRAIN02 (272-4602)
Website: http://www.bafound.org
The Brain Aneurysm Foundation provides support and educational materials to the medical community, the newly diagnosed, survivors, family members, friends, and the general public regarding the facts, treatment options, and recovery process for brain aneurysms. The website, which primarily targets the general public, includes links to a Foundation newsletter and information about research grants.
Brain Attack Coalition
Telephone: (301) 496-5751
Website: http://www.stroke-site.org
The Brain Attack Coalition is a group of professional, voluntary, and governmental entities dedicated to reducing the occurrence, disabilities, and death associated with stroke. Professional resources include guidelines and orders for systems development for acute stroke care (including stroke team or stroke center development), and pathways for the rapid diagnosis and treatment (both immediate and long-term) of acute stroke. Patient resources include links to sites that provide helpful information to stroke patients, their families, and caregivers.
ClinicalTrials.gov
Website: http://www.clinicaltrials.gov
ClinicalTrials.gov is a website supported by the U.S. National Institutes of Health (www.nih.gov) that offers up-to-date information for locating federally and privately supported clinical trials for a wide range of diseases and conditions. It currently contains more than 36,100 clinical studies conducted in all 50 states and in over 130 countries. ClinicalTrials.gov receives more than 12 million page views per month and hosts approximately 31,000 visitors daily. The website provides information about a trial's purpose, who may participate, locations, and contact information for more trial details.
National Institute of Neurological Disorders and Stroke
Telephone: (800) 352-9424
Website: http://www.ninds.nih.gov/disorders/stroke/stroke.htm
The National Institute of Neurological Disorders and Stroke (NINDS) is part of the U.S. National Institutes of Health. NINDS’ website, which is appropriate for the general public and medical professionals, has a section dedicated to stroke, treatment of stroke, stroke research and funding, and stroke-related associations. The site includes links to free publications and lists resources in Spanish.
National Stroke Association
Telephone: (303) 649-9299 or 800-STROKES (787-6537)
Website: http://www.stroke.org
The National Stroke Association is a national non-profit organization that devotes all of its resources to stroke through a variety programs, including education, services, and community-based activities in prevention, treatment, rehabilitation and recovery. National Stroke Association serves both the public and professional communities. The association offers an extensive website, including resources related to caregivers, women, African-Americans, and children.
Thompson CenterWatch
Telephone: (617) 856-5900
Website: http://www.centerwatch.org
The Thompson CenterWatch website has a wealth of information about clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the U.S. Food and Drug Administration. The website is designed to be an open resource for patients interested in participating in clinical trials and for research professionals.
SECONDARY SOURCES OF INFORMATION FOR NTI-ASP-0502 AND NTI-ASP-0503
American Health Assistance Foundation
Telephone: (301) 948-3244 or 800-437-AHAF (2423)
Website: http://www.ahaf.org
The American Health Assistance Foundation (AHAF) is a 501(c)(3) nonprofit organization funding research on and educating the public about age-related and degenerative diseases. AHAF has awarded more than $71 million in research grants to universities, hospitals, and medical centers around the world. AHAF’s website includes a list of research grants, as well as heart disease and stroke research projects.
Children's Hemiplegia and Stroke Association
Telephone: (817) 492-4325
Website: http://www.chasa.org
The Children's Hemiplegia and Stroke Association (CHASA) is a 501(c)(3) non-profit organization that offers assistance, information, and counseling to families of children who have hemiplegia, hemiparesis, or hemiplegic cerebral palsy. Often, these conditions are caused by stroke in an infant. The organization provides a 500+ page website, an e-mail support group with more than 990 members, plans and hosts an annual retreat and medical conference for families of children who have hemiplegia, local family events, funds pilot research studies, provides family retreat scholarships, and provides college scholarships for young adults who have hemiplegia.
Hazel K. Goddess Fund for Stroke Research in Women
Telephone: (212) 713-6789
Website: http://www.thegoddessfund.org
The focus of The Goddess Fund, a 501(c)(3) not-for-profit organization, is to address critical issues specific to stroke in women, including research, prevention, treatment, education, and advocacy.
Heart Rhythm Foundation
Telephone: (202) 464-3404
Website: http://www.heartrhythmfoundation.org
The Heart Rhythm Foundation works to raise awareness about heart rhythm disorders, their diagnosis, and treatment. The foundation has launched an education campaign about atrial fibrillation (a.k.a., A Fib); the chances of having a stroke are five times higher for those with A Fib. Information on A Fib pertinent to the general public and health care professionals can be found on the foundation’s website.
National Aphasia Association
Telephone: (212) 267-2814 or (800) 922-4NAA (4622)
Website: http://www.aphasia.org
Aphasia is the impairment of the ability to use or comprehend words, usually acquired as the result of a stroke or other brain injury. The National Aphasia Association makes people with aphasia, their families, support systems, and health care professionals aware of resources to recover lost skills to the extent possible, to compensate for skills that will not be recovered and to minimize the psychosocial impact of the language impairment. |
